A diagnosis of MS, the onset of new symptoms or increasing disability, can trigger a wide range of emotions, and it is impossible to describe a 'typical reaction'. While there are some common emotional experiences, how each individual responds will depend on their character and personal history.

People often find there is a particularly difficult time between the appearance of a new symptom and finding a way of managing it, during which they become very aware of the things they can no longer do. Once a way of managing the symptom is found, people often report that they feel more comfortable with their new situation.

Shock

A diagnosis of MS leaves many people overwhelmed and unable to connect to the news or to feelings they have about it. People often say things like 'It hasn’t really sunk in yet' or 'I feel stunned' or 'numb'. People may experience similar feelings later in their MS if they are affected by very different or life-altering symptoms. During this time, it can be difficult to absorb much information about the condition.

Fear and denial

It is a common human reaction to keep troubling or frightening issues at arm's length. Many people delay fully confronting a diagnosis of multiple sclerosis by denying it is happening – others find it easier to take control by seeking information and help.

In the short-term denial can be positive 'time-out', giving the space needed to adapt, but it can become problematic if it persists. If symptoms are not acknowledged, it can become more difficult to make the practical, emotional or social adjustments that are needed to manage a situation successfully. This may result in your not being able to live life to the full, may jeopardise your own health and safety, and could have a negative impact on others. For example, if you develop a bladder problem – which you deny – you may go on to develop serious complications, which might have been avoided had you seen a healthcare professional.

People may also have unrealistic or exaggerated fears about MS, and these fears can make it harder to acknowledge and adapt. Talking about the things that are troubling you, preferably to someone who knows about MS, like an MS nurse or the MS Society helpline, can be reassuring. Gathering information can also help you to make informed decisions and communicate effectively with healthcare professionals, so together you can establish the best ways of dealing with your particular situation.

Anger and frustration

The realisation that you are no longer able to do something you once could often leads to anger and frustration. Although these feelings are normal, they may also be a sign that you are resisting or fighting change. If the change can be acknowledged, and you begin to adjust to the new situation, you may find the anger goes away. However, it can take time, often a couple of years, to adapt and for these feelings to go completely.

Acknowledgement, accommodation, adaptation

Initially it can be hard to adapt to a condition that is as unpredictable as MS, may progress over time and carries a considerable risk of disability.

Many people find the idea of 'accepting' or 'embracing' their MS difficult, but notice that, with time, they can acknowledge it and learn to live with it. This process may be emotionally difficult, but over time you will get to know your own MS and the way your body reacts to it. You will learn new ways of living with your symptoms and with the changes MS brings.

Compliments of:  UK MS Society